Every year in July, I celebrate what I call a "Purple Anniversary." Purple is one of the colors that represent Lupus (the other is orange). My Purple Anniversary is my celebration of life. It's my "F*ck You" to Lupus saying, I'm still here and I'm happy and healthy to the best that I can be.
Every year, I try to do something in the outdoors. Lupus patients are sensitive to the sun rays. Too much sun exposure (and some are more sensitive than others) can lead to a Lupus episode, or flare. In the past, I've done bonfires at the beach in the late afternoon when the sun is down, afternoon beach trips, and dinners. I also make my guests wear purple :) I'll link all my relevant Lupus stories below if you're interested in seeing my Lupus journey.
This year, I didn't have my typical Lupus celebration. I felt that I had a lot of triumphs and celebrations this year, that those successes in themselves were a big "boo yeah" to Lupus. This year, I've paid off both my undergraduate and graduate school loans, I found out I was able to keep my $18,500 scholarship (long story), I was stepping up at work as a leader, I had many amazing birthday celebrations, I went to the Philippines. To be honest, by the time July hit, I was celebrated-out!
So this year, I didn't quite have the typical July celebration but I do feel I had a lot to celebrate. My triumphs and my feats are enough "F*ck Yous" to Lupus.
I have a lot to be thankful for. Lupus still has time to progress and takes it course, but for the time being, I am as healthy as I can be. And I hope and I pray that I can continue to be.
So here's to celebrating another year of life, health and happiness. I don't necessarily need a certain month to kick Lupus in the arse ;)
|Wine and cheese party|
|Afternoon beach date|
|Dinner, beach and gelato|
|Dinner party with purple flowers|
YEAR FOUR: I JUST KEPT CELEBRATING LIFE
|Leading a pilot program at a major Los Angeles hospital|
|Freedom Party: CSUN Edition|
|Freedom Party: UCLA Edition|
And the celebration continues...